Founders of the CMT4C Steering Team, Mary Cate (4Cer) and Aaron are dedicated advocates who work tirelessly to advance awareness, resources, and research for Charcot-Marie-Tooth disease type 4C. Over the past decade, they have raised over 100k for research for CMT, in addition to administrating and cultivating a thriving online support system of 4Cers. Their leadership and commitment have been instrumental in building a strong foundation of support for families and individuals affected by CMT4C.

As devoted parents of three children living with CMT4C, Todd and Traci bring a wealth of firsthand experience and deep empathy to the CMT4C community. They have navigated the complexities of 4C with courage and grace, becoming powerful advocates who understand the day-to-day challenges and triumphs of parenting with disability. Through their involvement, they offer invaluable insights, practical advice, and heartfelt support to other families, empowering them to face the unique obstacles CMT4C can present.

When Bob's son Quinn was diagnosed with CMT4C last year, he set out to make a difference. He founded the Foresee Project, an initiative aimed at advancing gene editing research to find a cure for CMT4C. Launching the Foresee Gala, his community brought together over a quarter of a million dollars in just one night, each penny dedicated to supporting the vital steps to getting a cure into the hands of sufferers of CMT4C. Bob's vision and dedication have provided hope and a pathway forward for the entire community.

Wayne brings a wealth of lived experience and wisdom to the CMT4C community. Having managed CMT4C throughout his life, Wayne generously shares his insights and perspective, offering guidance and encouragement to families and individuals affected by the condition. Wayne has been a foundational and active member of the support group and the steering team.

Monique is the mother of Keenan, a teenager with CMT4C, and a compassionate connector within the community. She welcomes newcomers to the CMT4C Facebook support group, gets them directly connected with important resources, helping families feel seen, heard, and supported as they begin their journeys with CMT4C.

Diagnosed with CMT4C as a teenager, Sabrina brings her unique perspective and passion to support the next generation affected by the condition. Now a young adult, Sabrina is deeply involved in fundraising efforts and connecting parents with valuable resources. Her dedication and lived experience make her an earnest advocate, inspiring young CMT4Cers and their families.